Texas Health Institute administrates a U.S. Department of Health and Human Services Health Resources and Services Administration (HRSA) Maternal and Child Health Bureau grant to coordinate a number of projects under the Mountain States Genetics Collaborative Center (MSRGCC). This effort includes the majority of THI's current forcus on genetics and genomics.
Overview of the work of MSGRCC:
The Mountain States Genetics Regional Collaborative Center includes more than 400 individuals from eight states in the Rocky Mountain West. It is comprised of physicians, nurses, laboratory professionals, genetic counselors, public health workers, and consumer advocates from university medical schools, genetic laboratories, hospitals, state and local health departments, medical societies, genetic support groups and other organizations and individuals that have a vested interest in genetics.
The eight states in our region have a combined area of 1,081,813 square miles and a population of more than 38 million people. While there are major urban areas in our region, the overall population density is about 37 people per square mile, approximately one half of the national population density per square mile. Among the culturally diverse groups who live in our region are Native Americans, Hispanic Americans, African Americans, and groups from Southeast Asia and Eastern Europe.
More than 600,000 births occur annually within our region, and 3 to 5 percent of these births are complicated by a genetic condition. Consequently, as many as 18,000 infants and their families in our region will require genetic services each year. The resources to serve these families are limited within each of our eight states. Coordination and collaboration among all people concerned with genetics services, lay and professional, help to maximize the use of relatively scarce resources.
History of MSGRCC:
Initiated in 1984 as one of 10 regional networks covering the nation, the original Mountain States Genetics Network was federally funded by the U.S. Department of Health and Human Services Health Resources and Services Administration (HRSA) Maternal and Child Health Bureau. Although Federal funding ended in 2001, the Network continued operations under the financial administration of the Mountain States Genetics Foundation. In 2004, The Mountain States Genetics Foundation was awarded a HRSA grant designed to support a national coordinating center through the Mountain States Genetics Network for regional genetic services and newborn screening collaboratives, including support for increasing the screening capacity of newborn screening programs to improve early identification of infants with hyperbilirubinemia. The new Mountain States Genetics Regional Collaborative Center now includes the original states of Arizona, Colorado, Montana, New Mexico, Utah and Wyoming, plus the addition of Texas and Nevada.
The MSRGCC prides itself as an open forum allowing all members - consumers and genetics professionals - the opportunity to participate as equals in addressing topical genetic services and issues.
To learn more about MSGRCC, please visit www.msgrcc.org
Other Resource Links:
National Coordinating Center for the Genetics and Newborn Screening Regional Collaborative Groups ; Health Resources and Services Administration, Genetic Services Branch ; National Newborn Screening and Genetics Resource Center ; The Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children (ACHDGDNC) ; Genetic Alliance ; CDC, Using Family History to Promote Health ; U.S. Surgeon General%u2019s Family History Initiative ; National Network of Libraries of Medicine ; Nanotechnology Changing Our Lives: Privacy, Health, Environment ; US Dept of Health & Human Services, Health Resources & Services Administration (HRSA), Find Grant Awards ; US Dept of Health & Human Services, Health Resources & Services Administration (HRSA), Maternal & Child Health Bureau ; Find Your State Health Department, (CDC) ; Emergency Management Assistance Compact